My Prayer This Day

Heavenly Father,

I pray for President Obama and his family that you would cover them all with a hedge of protection. I pray for him and in all his dealings with our nation and the world. Please lead him down the path you have set for him and keep him and our nation in your hands. Help him make wise and honorable decisions in all things. Remind all of us as citizens to support him with our prayers, our words and our actions.

Amen

I personally didn't vote for Obama but I will pray that he will seek God in all that he does and that God will protect him and his family.

1 Peter 2:9 (NIV)
But you are a chosen people, a royal priesthood, a holy nation, a people belonging to God, that you may declare the praises of him who called you out of darkness into his wonderful light.

Amy's and Emily's Journey Part 3 ~ Answers

Well, Praise God we have answers!

Believe it or not the girls had two totally different things.

Amy had an Immune Complex. This is were her immune system was attacking her immune system. Dr. Patel explained it like this - it is like you have a loaded gun and you are pulling the trigger, once you get the trigger to a certain point you can't go back you have to fire. He said that since this wasn't caught early (back in August when it started) that it would have to run its course which takes anywhere from 3 to 4 months. Well I am so glad to let you all know that the blisters on Amy's tongue are gone, Thank you Jesus.

Emily's blisters started up on the 22nd of November. She had a virus that last 3 to 4 weeks and I am so glad to let you know that the blisters on Emily's tongue are gone, Thank you Jesus.

Well, all of us are doing well including David who is moving around and looks to be at 90% (recovering from his pneumonia).

Thank you all for your love and prayers!

Amy's and Emily's Journey Part 2

Well, last Wednesday we saw Dr. Patel and we LOVE him. He is so knowledgeable. He has several different things in mind of what could possibly be causing the blisters in the girls mouths. He took 4 tubes of blood each from both Emily and Amy, they were both brave. We should have answers hopefully by December 16th.

Please continue to keep them both in your prayers and I will update as soon as I get more information.

Amy's Journey Part 1

Well, as you all know Amy still has the blisters on her tongue, this has been going on for well over 3 months now.

Saturday, November 22nd, Emily came up to David and said I think I have Amy's blisters in my mouth. And low and behold my heart sank as she opened her mouth for us to see the blisters that are now on her tongue.

My chiropractor told me to rub honey on their tongues as this will help. And you know what it has helped with the discomfort and pain but it has not healed it.

I asked Emily how they felt and she said they itch, as Amy was not able to tell me exactly how it felt only that it hurt.

So tomorrow we are off to see Dr. Patel, an oncologist. I am praying and hoping he will be able to help us figure out what this is and what is going on. We do know that from the pathology report this is not life threatening but I still want to figure it out and get them taken care of.

Please continue to keep the girls in your prayers as we continue this journey.

David Update

Well, David went to the doctor this morning and he is definitely going to stay home at least one more week maybe longer. The pneumonia has really taken a toll on him as he barely gets up for a few minutes and he is worn out. He started fever again tonight so continue to say a prayer for him.

The Pathology Report - Amy

First I want to Thank God for his faithfulness for I know He is in control and I want to give Him thanks and praise!!

The Pathology report shows negative for dysplasia and for definitive fungal elements. Basically there is nothing life threatening.

The Doctor said she will be fine but there is something that is entering the mouth that is causing the blisters and we have to figure it out.

Please continue to keep Amy in your prayers as we figure out the next step to help her through her journey and for her healing for her to no longer have pain. I am going to call the pedi on Monday because the Doctor said he would call him to let him know what is going on in the next day or two but basically the oral surgeon has done all he can.

Thank you all so much for your love, concern, faith and prayers as I know with all my heart God is in control.

Look at this cute craft Amy made today at her Thanksgiving party!

Amy Update Day 7

Well, Amy's night (last night) was not too bad. Thanks for your prayers - God is hearing and answering - because she fell asleep playing her leapster (great distraction).

I woke her up this morning and her tongue was bothering her not near as much as yesterday. She went to school and is looking forward to her Thanksgiving day parties tomorrow and Friday.

I got a call from the Doctors office and they had a cancellation so we are now going at 1:30 instead of 3:30 which works out better for us.

Keep Amy in your prayers tonight that she will be comforted and not feel the pain of these blisters and for her appointment tomorrow that we will find out something so we can help this little princess.

Amy Update Day 5

Well, Amy seems to be doing a lot better. I didn't wake her up for school today I wanted to give her at least one more day to catch up on sleep and this she did she slept till 10:00 this morning. Amy is eating all her favorites from BB's (bacon) to gold fish. She hadn't asked for pain medicine since we left the hospital Saturday until tonight. She has been playing since she woke up and is talking up a storm. *Amy does want to get back to school as she has her Thanksgiving parties on Thursday and Friday, yes you read right she gets to participate in 2 parties because she goes 5 days a week.

On the other hand Emily has had a bad cough since this weekend and we even took her to Urgent Care on Saturday (or should I say David did because I just didn't have anything left in me). She had a rough night last night so I let her stay home and we paid a visit to the pedi today. She will be ok and will go back to school tomorrow, the evenings are tough though with her constant coughing that comes deep from within her chest.

Oh and how am I you ask? I am very very tired and even a little on the grumpy side. I have groceries to buy, shopping to do, finish laundry, finish cleaning the house, it never ends, LOL! But I won't complain because we are alive and God is so good!

Thanks again for your prayers as God is faithful!

Amy has her follow up appointment Thursday at 3:30 pm. Please continue to pray for Amy's healing and for answers.

Amy Update Day 3 & 4

Well, we are home and arrived home yesterday a little after noon. Amy is doing better but still has discomfort from her tongue, I am hoping and praying it looks worse than it feels because it looks bad to me.

So Friday morning Amy's CO2 level was 16, it was 13 Thursday evening when we showed up to ER and should be in the 20's. By Friday evening we were at 19 and by Saturday morning it dropped to 18. I thought we were going to stay another night and this time I was going to MAKE David do it. Don't get me wrong because I LOVE to take care of my little princess but I am going on 2 to 3 days with a few hours of sleep.

Amy was taking this hospital visit like it was a sleep over, she would fight her sleep even on the med's to stay up till 1 and 2 am in the morning to watch TV, and even asked me if we were going to have a sleep over. When I told her that if she had to stay Saturday night that Daddy was going to stay with her she fussed and said no she didn't want him to because he will turn off the TV, so this is where I messed up by not turning it off but how could I when my little princess was in pain and going through all this?

So Amy feel asleep Friday night at 1:30 in the morning or should I say Saturday at 1:30 am. She was in a sound sleep until the nurse came to draw blood and it wouldn't come out the ivy. Oh, no Amy was about to get a very rude awakening. So at 4:45 am the nurse came with help to hold her down and they woke up Amy and got the blood and Amy fussed, kicked and cried. And you know what after that she didn't fall back to sleep (who could though after that?).

When we got home yesterday Amy ate a can of Princess and Dora Campbell's Chicken Noodle Soup and ate a half of a bag of goldfish (I am thankful that she can tolerate a little salt). She fell asleep while watching a movie at 4 pm and woke up at 9 am this morning. She was very exhausted as she only got 4 hours of sleep the night before and she is hungry and ready to eat.

Amy hasn't had any pain medicine since Friday evening so either she is tolerating the pain or doesn't need it any more but I guess I will find out for sure here shortly.

Thanks again for your prayers as Amy is moving along. Please pray for an answer, the oral surgeon is not for sure but is leaning toward "burning tongue syndrome" and we will find out more Thursday at Amy's follow up when we get the results back from the biopsy.

Here is a picture of Amy with Maggie (the dog). Maggie came by to visit Amy. Amy almost missed Maggie because she was asleep but Amy woke up just in time to see Maggie do some tricks.

Amy is eating the BRAT diet. Of course she can't do banana's which are one of her favorites because even before the biopsy it would burn her tongue. She doesn't like applesauce and forget the rice. The only thing she ate was the toast. Oh and let me tell you she ate the all the purple Popsicles that the Pedi Q had, LOL, the proof is the purple lips you see! Amy wanted more but she ate them all. Oh and she did enjoy the gram crackers too!

You can see that Amy was starting to feel better. And I know this to be true because she was bossing me around.

Amy is talking to Emily on the phone. Emily was very worried and concerned about her little sister.

Amy Update Day 2

Well, the reason there hasn't been and update or you haven't heard from me is because last night about 6 pm Amy started vomiting and wouldn't stop so I took her to the ER. We got there about 9:15 pm and she finally was admitted at 11:00 pm before an ivy went in. The first try they blew her vain because she was so dehydrated and thank God the second time worked but of course she was very upset.

They gave her some medicine to help the nausea and it did kick in but the blood work was showing that Amy was severely dehydrated so they admitted her. Of course they didn't have a room for her and finally at 3:30 am they took us up to her room. Amy finally had fallen to sleep about 2:30 am and sleep till 11:00 am this morning (she needed it).

I came home real quick to get a bath and change of clothes and do a quick update.

It looks like we will be there for sure tonight and maybe another night depending on what levels her blood work shows.

Please keep her in your prayers that she gets better and that she wouldn't be scared to eat because that is the only way she is going to get better.

Prayer for Amy

For those of you that don't know Amy has been suffering with painful blisters on her tongue for about 3 1/2 to 4 months now. We were at the pedi's office about every week because of the pain. When he did all he knew to do and could (with no results) he sent us to an oral surgeon.

We have seen the oral surgeon 3 times in 4 weeks and he is puzzled and her condition is getting worse so we are scheduled for a tongue biopsy this Wednesday at 11:00.

The first hard thing about the time is keeping a 4 year old away from food and water till 11:00. We have come up with a plan to distract her but I don't know how long it will work, so we need your prayers please.

Please keep Amy in your prayers that we will get answers, that God would protect her during the procedure and for a speedy recovery. From what the doctor say this will be a painful experience.